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AUTISM

RESEARCH

Amazing House of Hope Research & Development Center, Inc., is closing a major gap in autism research by focusing on young adults often overlooked after age 18 who struggle with severe behavior challenges. Our residential campus provides an ideal environment for obtaining authentic, evidence-based data in a controlled setting, where progress can be closely observed, and the effectiveness of various strategies can be measured. Our residential campus provides a safe, structured setting to study strategies that truly work for this population. 

 

Amazing House of Hope Research & Development Center, Inc. is addressing a critical gap in autism research by focusing on young adults with severe behavioral challenges, an age group often overlooked after 18.

Our residential campus offers a safe, structured environment to collect meaningful, real-world data. In this controlled setting, progress can be closely observed and the effectiveness of evidence-based strategies accurately measured for this underserved population.

For decades, autism research and services have concentrated on early childhood through adolescence. Once individuals reach adulthood, resources, services, and research opportunities sharply decline, even though the underlying causes of challenging behaviors do not disappear.

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Behaviors once labeled as “concerning but manageable” in childhood can become dangerous in adulthood when emotional dysregulation remains untreated. Many families face recurring crises, including hospitalizations, law enforcement involvement, or devastating community misunderstandings. While comprehensive data is limited, these individuals are too often met with fear rather than informed support, raising the risk of serious outcomes.

A key contributor is the transition out of the education system. Many students graduate having technically met IEP goals, yet lack essential life and emotional regulation skills needed for adulthood. Once school support ends, these young adults frequently experience worsening dysregulation, revealing a critical disconnect between educational outcomes and real-world readiness.

Our work exists to close this gap—transforming overlooked years into a foundation for safety, stability, and meaningful adult life.

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On average, an autistic student who begins early intervention at age three and receives services through age 21 spends nearly two decades in the education system. With Extended School Year (ESY) services, that support can stretch into the early twenties. But time alone does not equal success—especially when the focus remains on academic benchmarks rather than the behavioral and functional supports needed to achieve them.

This raises critical questions:

  • How do students with persistent aggressive behaviors meet IEP goals or complete transition programs without adequate behavioral intervention?

  • If educational and transition goals were “successfully” met, why does autism unemployment remain as high as 85%?

  • How can systems claim success when so many autistic young adults exit high school unable to function independently in society?

These questions often go unanswered. Educational systems rarely document their own gaps, particularly when doing so challenges the status quo. As a result, many capable young adults are left isolated at home, dependent on limited Social Security benefits, spending their days disengaged from meaningful work or community life. Programs that address their complex behavioral and vocational needs are scarce.

This should not be the outcome. With appropriate behavioral and vocational supports, many of these individuals can maintain part-time employment, and in many cases, exceed expectations and achieve meaningful independence.

Amazing House of Hope Research Goals

While we cannot undo past system failures, Amazing House of Hope is committed to meeting young adults where they are and helping them rebuild, grow, and reach their maximum potential. Through partnerships with institutions that share our commitment to autism and emotional regulation, we aim to:

  • Collect reliable, real-world data

  • Identify insights that change outcomes

  • Develop practical solutions for others facing similar challenges

 

 

 

 

 

 

 

 

 

 

 

 

 

What the Research Says and What It Doesn’t:

Existing research on aggression in autism focuses largely on children and adolescents. There is far less research on autistic young adults, particularly those with severe behavioral challenges and higher support needs.

Currently, limited research directly connects:

  • Severe aggressive behavior

  • Educational outcomes

  • Long-term unemployment in autistic adults over 18

Where the Gaps Are:

  • Longitudinal studies following individuals into adulthood are extremely rare.

  • Most research is cross-sectional, offering only snapshots in time and often relying on caregiver reports rather than direct observation or functional assessment.

  • Real-world outcomes, such as employment and community living, are rarely studied for autistic adults with significant behavioral challenges.

  • Few intervention studies address aggression throughout the transition into adulthood, and even fewer use rigorous, randomized controlled methods.

It’s Time for Change:

It’s time to put autistic young adults on the map. It’s time to look deeper, address the root causes of behavior, and develop effective, evidence-based supports for this underserved population.

Amazing House of Hope Autism Research & Development Center, Inc. welcomes local and global research partnerships to transform data into real solutions, helping young adults reach their highest potential and live fulfilling lives. We invite researchers and institutions to contact us about upcoming collaboration opportunities.

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